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Noma: an interdisciplinary exploration of the realities, burden and framing of a neglected disease
Noma (cancrum oris) is a gangrenous disease which destroys the soft and hard facial tissues. It predominantly affects children aged 2-6 years living in extreme poverty. With a high mortality rate of up to 90%, noma leaves survivors with significant aesthetic and functional sequelae, suffering intense social isolation, stigmatisation and discrimination.

The Noma Project is a collaborative undertaking among researchers from various universities, benefitting from the support of non-, inter- and governmental partners. In an effort to achieve greater understanding of noma and engender action to prevent, detect and treat this disease and redress the associated human rights violations, the Noma Project seeks to:
1. Establish noma’s epidemiology & global burden;
2. Portray the realities & lived experiences of child and adult noma survivors, and
3. Evaluate the implications of the framing of noma as a human rights issue & neglected tropical disease.

During this Geneva Health Forum session, researchers involved in the Noma Project will be presenting preliminary findings of a systematic literature review on noma, legal analysis, and in-country fieldwork in Burkina Faso and Niger. We invite you to an interactive discussion with our researchers with the aim to explore modalities of generating scholarly and social impact relating to noma.

The panel will be chaired by Professor Emmanuel Kabengele Mpinga from the Institute of Global Health, University of Geneva. Questions & answers will be moderated by Dr Ioana Cismas from the Centre for Applied Human Rights & York Law School.

The panelists are:
• Dr Denise Baratti-Mayer (Switzerland)
• Maïna Sani Malam Grema (Niger)
• Dr Moubassira Kagone (Burkina Faso)
• Alice Trotter (United Kingdom)
• Anaïs Galli (Switzerland)

For more information : https://lc.cx/n5KM39

Jun 17, 2021 11:00 AM in Zurich

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